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Winterbourne View report: Learning disability care 'failing' Care for people with learning disabilities 'failing', report says
(about 3 hours later)
The government is failing those with learning disabilities in England by keeping them in hospitals far from home for too long, a report says. People with learning disabilities in England are being kept in hospitals far from home for too long, a review says.
The report Winterbourne View - Time for Change comes after abuse was exposed at a Bristol care home in 2011. The report, written by Sir Stephen Bubb, recommends introducing a charter of rights and more community facilities for people with learning disabilities.
Its author, Sir Stephen Bubb, was asked by NHS England how to address "serious shortcomings" in support for those with learning disabilities. It also says some "inappropriate" in-patient facilities should be closed.
It has 10 recommendations, including improved training for NHS staff. The report comes after abuse was exposed at Winterbourne View care home in Bristol in 2011.
NHS chief executive Simon Stevens has called for "radical changes" in care for those with learning disabilities. Sir Stephen, chief executive of the Association of Chief Executives of Voluntary Organisations (ACEVO), was asked by NHS England how to address "serious shortcomings" in support for those with learning disabilities.
Sir Stephen is chief executive of the Association of Chief Executives of Voluntary Organisations (ACEVO) and chaired an independent group who compiled the report. The report - "Winterbourne View - Time for Change" - offers 10 recommendations for the NHS, local government, regulators and the government.
Its recommendations are for the NHS, local government, regulators and the government. They include a framework to support people with learning disabilities and autism move out of hospitals and into the community. They include a framework to support people with learning disabilities and autism move out of hospitals and into the community.
Its other recommendations include:Its other recommendations include:
'Immediate action''Immediate action'
Sir Stephen said the Winterbourne View "scandal" had "shocked the nation" and that had led to pressure to prevent such a case from happening again.Sir Stephen said the Winterbourne View "scandal" had "shocked the nation" and that had led to pressure to prevent such a case from happening again.
Neglect and abuse of patients by staff at the Winterbourne View private hospital, near Bristol, was uncovered by BBC Panorama. Six people were jailed in 2012 and five given suspended sentences.Neglect and abuse of patients by staff at the Winterbourne View private hospital, near Bristol, was uncovered by BBC Panorama. Six people were jailed in 2012 and five given suspended sentences.
Sir Stephen added: "People are still angry and frustrated that more people with learning disabilities are being placed in institutional care than moved into the community. Sir Stephen said: "People are still angry and frustrated that more people with learning disabilities are being placed in institutional care than moved into the community.
"We urge immediate action, to close all Winterbourne-style institutions and ramp up community provision."We urge immediate action, to close all Winterbourne-style institutions and ramp up community provision.
"We need a new charter of rights to empower people with learning disabilities and their families, and give them the right to challenge the system. We need that system to have the courage to act on these recommendations, and not to promise another false dawn."We need a new charter of rights to empower people with learning disabilities and their families, and give them the right to challenge the system. We need that system to have the courage to act on these recommendations, and not to promise another false dawn.
"The time for talk is over. It's time for people with learning disabilities or autism and their families to be put first.""The time for talk is over. It's time for people with learning disabilities or autism and their families to be put first."
Care review 'Radical changes'
Mr Stevens said changing the way those with learning disabilities were cared for would mean "challenging legacy models of institutional care". Leo Andrade, whose 19-year-old-son Steven has severe autism and lives in a hospital in Northampton, welcomed the report.
"NHS England's recent work with people with learning disabilities, and this new report, all now prove that radical changes are needed in NHS and social care, so that people with learning disabilities and their families increasingly take control of how the services they want and need are provided." Mrs Andrade lives in London and spends up to four hours travelling to see her son. She said she has "no trust whatsoever in the system".
Jane Cummings, chief nursing officer for England, said: "We asked Sir Stephen to tell us how the NHS can better plan and fund care, treatment and support for people with learning disabilities and autism. He's done that. "I do not want my son again in any other institution," she said. "I also find the idea that having my son away from us is robbing us of having a family."
"This report asks every part of the system to respond. We are committed to playing a full and active role in the implementation of the recommendations and call on others to do the same." Mrs Andrade also warned implementing the recommendations would not be easy, suggesting decision makers often shy away from risky decisions.
NHS England chief executive Simon Stevens has called for "radical changes" in care for those with learning disabilities, saying it would mean "challenging legacy models of institutional care".
"NHS England's recent work with people with learning disabilities, and this new report, all now prove that radical changes are needed in NHS and social care, so that people with learning disabilities and their families increasingly take control of how the services they want and need are provided," he said.
'Active role'
Jane Cummings, chief nursing officer for England, said: "This report asks every part of the system to respond. We are committed to playing a full and active role in the implementation of the recommendations and call on others to do the same."
NHS England said all local NHS leaders must now have a register of inpatients with learning disabilities and autism to create informed local care plans.NHS England said all local NHS leaders must now have a register of inpatients with learning disabilities and autism to create informed local care plans.
It is also carrying out care and treatment reviews, which looks at whether a patient is receiving the right care in the right place and takes into account the patient's requests.It is also carrying out care and treatment reviews, which looks at whether a patient is receiving the right care in the right place and takes into account the patient's requests.
NHS England expect about 1,000 reviews, which are supported by clinicians as well as NHS and local authority commissioners, to have taken place by the end of the year.NHS England expect about 1,000 reviews, which are supported by clinicians as well as NHS and local authority commissioners, to have taken place by the end of the year.
Are you, or is someone you know, affected by the issues raised by the report? Email haveyoursay@bbc.co.ukwith your experience.Are you, or is someone you know, affected by the issues raised by the report? Email haveyoursay@bbc.co.ukwith your experience.
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