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Tomlinsons make drug review call | Tomlinsons make drug review call |
(about 7 hours later) | |
Fund-raiser Jane Tomlinson's family and the NHS trust that treated her have called for a review of the availability of advanced trial drugs. | |
Mrs Tomlinson's husband Mike said she found it "distressing" that she could not get access to Lapatinib, when it was available elsewhere in the UK. | |
Along with the Leeds Teaching Hospitals NHS Trust, he has asked the government to stop it happening to other patients. | |
Mrs Tomlinson died in September, aged 43, after a seven-year cancer battle. | Mrs Tomlinson died in September, aged 43, after a seven-year cancer battle. |
Mr Tomlinson said his wife's medical team in Leeds decided Lapatinib was her best option. | |
'Caused distress' | |
However, Leeds Teaching Hospitals NHS Trust had taken the decision not to participate in a GlaxoSmithKline-sponsored access study of the treatment. | |
He told reporters: "Clearly it was quite distressing for Jane to find that she would no longer be able to have the treatment that everyone thought would be most suitable for her. | |
"It caused a lot of distress to her and a lot of upset." | |
Mr Tomlinson said further approaches were made to the drug company itself and to the NHS in Nottingham, where she was eventually accepted on to the trial in April. | |
He added: "During those three months Jane suffered a severe decline in health and certainly by the end of March she felt that she was almost at the end of her life. | |
"There was no doubt in our minds that delay and inability to get treatment had a long-term impact on Jane's health at that time. | |
'Extremely cross' | |
"Clearly... we were raising money for the hospital at the same time as Jane's options were being limited. | |
"We made a conscious decision to continue supporting the Yorkshire Cancer Centre and the Trust because we felt not doing so would be petulant and wrong. | |
"Our aim was to try and help those people who were suffering like Jane." | |
Mr Tomlinson said his wife was extremely proud to have worked for the trust and said it had her "unflinching support" as an employee. Mrs Tomlinson worked as a radiographer. | |
However, he added: "She was extremely cross that there were inconsistencies across the health service which allowed some patients treatment and some patients not treatment." | |
While terminally-ill, Mrs Tomlinson raised more than £1.75 million for charity by running in three London Marathons, several triathlons and The Great North Run. |