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Nottingham food-fear boy Daniel Harrison's future 'positive' | Nottingham food-fear boy Daniel Harrison's future 'positive' |
(1 day later) | |
By Neil Heath BBC News, Nottingham | By Neil Heath BBC News, Nottingham |
Kevin Harrison's darkest days came as he watched his young son wasting away - terrified of the food and drink that would keep him alive. | Kevin Harrison's darkest days came as he watched his young son wasting away - terrified of the food and drink that would keep him alive. |
His son Daniel, six, from Nottingham, has a fear of consuming food thought to have been triggered by acid reflux. | His son Daniel, six, from Nottingham, has a fear of consuming food thought to have been triggered by acid reflux. |
The illness is caused by acid from the stomach leaking into the oesophagus and causing chest pain and nausea. | The illness is caused by acid from the stomach leaking into the oesophagus and causing chest pain and nausea. |
Daniel took breast milk as a baby, which neutralised the chemical, but the problem became apparent when he was introduced to whole food, later. | Daniel took breast milk as a baby, which neutralised the chemical, but the problem became apparent when he was introduced to whole food, later. |
"He was taking a little rice for a week or so and some puree," said Mr Harrison. | "He was taking a little rice for a week or so and some puree," said Mr Harrison. |
"But once he started vomiting, the unwillingness to eat or drink was constant." | "But once he started vomiting, the unwillingness to eat or drink was constant." |
He added Daniel, who also has autism, must have realised drinking and eating was hurting him but he could not articulate this to his parents. | He added Daniel, who also has autism, must have realised drinking and eating was hurting him but he could not articulate this to his parents. |
Daniel would become hysterical and would even self-harm, and later had to be fed through a tube in his stomach. | Daniel would become hysterical and would even self-harm, and later had to be fed through a tube in his stomach. |
TV interest | TV interest |
Two years ago, about £25,000 was raised by his family to get Daniel treatment at a specialist clinic in Graz, Austria. | Two years ago, about £25,000 was raised by his family to get Daniel treatment at a specialist clinic in Graz, Austria. |
Following the first trip, he allowed his parents to feed him liquidised food orally. | Following the first trip, he allowed his parents to feed him liquidised food orally. |
It was a huge breakthrough but Mr Harrison was eager for Daniel to return to Austria to complete the treatment. | It was a huge breakthrough but Mr Harrison was eager for Daniel to return to Austria to complete the treatment. |
The programme, designed to encourage him to take both food and liquid, was a mixture of physiotherapy, occupational therapy, picnic role play, and swimming - to get Daniel used to having water on his face and lips. | The programme, designed to encourage him to take both food and liquid, was a mixture of physiotherapy, occupational therapy, picnic role play, and swimming - to get Daniel used to having water on his face and lips. |
The NHS agreed to fund further therapy, at a cost of £6,000, but his family had to pay for flights and accommodation. | The NHS agreed to fund further therapy, at a cost of £6,000, but his family had to pay for flights and accommodation. |
On the first day back in Graz - 13 August - the Harrisons were filmed by a German TV crew, such has been the international interest in Daniel's story. | On the first day back in Graz - 13 August - the Harrisons were filmed by a German TV crew, such has been the international interest in Daniel's story. |
The doctors had realised Daniel was not only frightened of food but of spoons too, and much of their work was about getting him to trust them. | The doctors had realised Daniel was not only frightened of food but of spoons too, and much of their work was about getting him to trust them. |
One wrong step and they would have to start all over again. | One wrong step and they would have to start all over again. |
However, in the glare of the cameras something miraculous happened. | However, in the glare of the cameras something miraculous happened. |
"Eva Kerschischnik (Daniel's therapist) kept tickling him with a spoon," said Mr Harrison. | |
'No more screaming' | 'No more screaming' |
"She then started feeding him his milk, mixed with baby rice, and he tolerated a couple of mouthfuls. | "She then started feeding him his milk, mixed with baby rice, and he tolerated a couple of mouthfuls. |
"Then she offered Daniel a chocolate lollipop and he bit a piece off. In nearly six years of his life, this was the first time he had bitten into anything. | "Then she offered Daniel a chocolate lollipop and he bit a piece off. In nearly six years of his life, this was the first time he had bitten into anything. |
"We could not believe our eyes, no more screaming, self-harm, tantrums. We were in tears." | "We could not believe our eyes, no more screaming, self-harm, tantrums. We were in tears." |
Dr Kerschischnik, described as a "genius" by Mr Harrison, has since become Daniel's godmother and has visited the family in Nottingham. | |
Daniel has continued to make progress and now eats pureed food with lumps, and also drinks from a cup. | Daniel has continued to make progress and now eats pureed food with lumps, and also drinks from a cup. |
Mr Harrison said the year ahead is the first the family can look forward to for a long time. | Mr Harrison said the year ahead is the first the family can look forward to for a long time. |
"I want to raise awareness and reach out to families in a similar situation," he said. "We had no-one and we felt alone as [Daniel's] condition is so rare," he said. | "I want to raise awareness and reach out to families in a similar situation," he said. "We had no-one and we felt alone as [Daniel's] condition is so rare," he said. |
"But things now feel a lot better." | "But things now feel a lot better." |
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