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Boy's fight to cure rare disease Boy's fight to cure rare disease
(about 3 hours later)
A 12-year-old boy from Nottinghamshire is fighting to find a cure for a rare bone disease.A 12-year-old boy from Nottinghamshire is fighting to find a cure for a rare bone disease.
Jack Beaumont, from Sutton-in-Ashfield, is believed to be one of just 300 people in the world who have been diagnosed with melorheostosis.Jack Beaumont, from Sutton-in-Ashfield, is believed to be one of just 300 people in the world who have been diagnosed with melorheostosis.
The disease, which causes excess bone growth, has left Jack with half the normal movement in his right arm.The disease, which causes excess bone growth, has left Jack with half the normal movement in his right arm.
He is meeting experts at a national conference on melorheostosis in Oxford on Friday. He was meeting experts at a national conference on melorheostosis in Oxford on Friday.
Jack and fellow sufferers will share their stories at the UK Melorheostosis Conference. Jack and fellow sufferers shared their stories at the UK Melorheostosis Conference.
"I'm hoping for some answers and I'm looking forward to meeting some other people who've got the same disease as me," he said."I'm hoping for some answers and I'm looking forward to meeting some other people who've got the same disease as me," he said.
His mother, Nicola Beaumont, added: "He just shrugs it off because he's so laid back, nothing affects him in that respect but I think as he gets older, he's going to find more restrictions."His mother, Nicola Beaumont, added: "He just shrugs it off because he's so laid back, nothing affects him in that respect but I think as he gets older, he's going to find more restrictions."