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Boy's fight to cure rare disease | Boy's fight to cure rare disease |
(about 3 hours later) | |
A 12-year-old boy from Nottinghamshire is fighting to find a cure for a rare bone disease. | A 12-year-old boy from Nottinghamshire is fighting to find a cure for a rare bone disease. |
Jack Beaumont, from Sutton-in-Ashfield, is believed to be one of just 300 people in the world who have been diagnosed with melorheostosis. | Jack Beaumont, from Sutton-in-Ashfield, is believed to be one of just 300 people in the world who have been diagnosed with melorheostosis. |
The disease, which causes excess bone growth, has left Jack with half the normal movement in his right arm. | The disease, which causes excess bone growth, has left Jack with half the normal movement in his right arm. |
He was meeting experts at a national conference on melorheostosis in Oxford on Friday. | |
Jack and fellow sufferers shared their stories at the UK Melorheostosis Conference. | |
"I'm hoping for some answers and I'm looking forward to meeting some other people who've got the same disease as me," he said. | "I'm hoping for some answers and I'm looking forward to meeting some other people who've got the same disease as me," he said. |
His mother, Nicola Beaumont, added: "He just shrugs it off because he's so laid back, nothing affects him in that respect but I think as he gets older, he's going to find more restrictions." | His mother, Nicola Beaumont, added: "He just shrugs it off because he's so laid back, nothing affects him in that respect but I think as he gets older, he's going to find more restrictions." |
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