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Charlie Gard's parents given more time before life support is turned off Charlie Gard's parents given more time before life support is turned off
(1 day later)
Mother Connie Yates says hospital has agreed to let them spend longer with baby and they are ‘making precious memories’
Haroon Siddique
Fri 30 Jun 2017 16.46 BST
Last modified on Wed 20 Sep 2017 19.03 BST
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The parents of Charlie Gard, the critically ill baby whose fate has been the subject of a protracted legal battle, say they have been granted more time to spend with him before his life support is withdrawn.The parents of Charlie Gard, the critically ill baby whose fate has been the subject of a protracted legal battle, say they have been granted more time to spend with him before his life support is withdrawn.
They had previously said his mechanical ventilator would be switched off on Friday after decision by the European court of human rights (ECHR) to uphold the judgments of the British courts that found in favour of Great Ormond Street hospital.They had previously said his mechanical ventilator would be switched off on Friday after decision by the European court of human rights (ECHR) to uphold the judgments of the British courts that found in favour of Great Ormond Street hospital.
Chris Gard and Connie Yates wanted 10-month-old Charlie, who has a form of mitochondrial disease – a genetic condition that causes progressive muscle weakness and brain damage – to have experimental treatment in the US. But the hospital’s doctors said that, given Charlie’s condition, the therapy was unlikely to have a beneficial outcome.Chris Gard and Connie Yates wanted 10-month-old Charlie, who has a form of mitochondrial disease – a genetic condition that causes progressive muscle weakness and brain damage – to have experimental treatment in the US. But the hospital’s doctors said that, given Charlie’s condition, the therapy was unlikely to have a beneficial outcome.
After the ECHR’s decision on Tuesday, Gard and Yates said they had begged the hospital to be given the weekend for friends and family to see Charlie but that their plea had been rejected.After the ECHR’s decision on Tuesday, Gard and Yates said they had begged the hospital to be given the weekend for friends and family to see Charlie but that their plea had been rejected.
But on Friday, Yates told Mail Online: “We have been in talks today with Great Ormond Street and they have agreed to give us a little bit more time with Charlie.But on Friday, Yates told Mail Online: “We have been in talks today with Great Ormond Street and they have agreed to give us a little bit more time with Charlie.
“We are really grateful for all the support from the public at this extremely difficult time.“We are really grateful for all the support from the public at this extremely difficult time.
“We’re making precious memories that we can treasure forever with very heavy hearts. Please respect our privacy while we prepare to say the final goodbye to our son Charlie.”“We’re making precious memories that we can treasure forever with very heavy hearts. Please respect our privacy while we prepare to say the final goodbye to our son Charlie.”
British courts ruled that it would be lawful for the hospital to withdraw life-sustaining treatment because it was highly probable Charlie would suffer significant harm if his life was prolonged without realistic prospect of an improvement.British courts ruled that it would be lawful for the hospital to withdraw life-sustaining treatment because it was highly probable Charlie would suffer significant harm if his life was prolonged without realistic prospect of an improvement.
They cited established human rights law, which dictates that the rights of a child should take precedence over the rights of their parent.They cited established human rights law, which dictates that the rights of a child should take precedence over the rights of their parent.
On Tuesday, the ECHR rejected the appeal by Charlie’s parents. Describing the British court judgments in the case as “meticulous”, the judges said: “The decision is final.”On Tuesday, the ECHR rejected the appeal by Charlie’s parents. Describing the British court judgments in the case as “meticulous”, the judges said: “The decision is final.”
The hospital has described the difference of opinion over Charlie’s fate as “a very distressing situation for Charlie’s parents and all the staff involved”.The hospital has described the difference of opinion over Charlie’s fate as “a very distressing situation for Charlie’s parents and all the staff involved”.
A court order banned identification of the doctors and medical staff involved in the treatment and the name of the hospital in the US where Charlie’s parents hoped to take him for nucleoside bypass therapy treatment.A court order banned identification of the doctors and medical staff involved in the treatment and the name of the hospital in the US where Charlie’s parents hoped to take him for nucleoside bypass therapy treatment.
Gard and Yates, who are in their 30s, launched a fundraising appeal to help pay for doctors’ bills in the US. It reached a £1.2m target before the initial high court trial and has now topped £1.3m, attracting more than 83,000 donations.Gard and Yates, who are in their 30s, launched a fundraising appeal to help pay for doctors’ bills in the US. It reached a £1.2m target before the initial high court trial and has now topped £1.3m, attracting more than 83,000 donations.
UK news
Health
Children
Charlie Gard
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