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Version 1 Version 2
'I'm just another Scot with MS' 'I'm just another Scot with MS'
(about 2 hours later)
By Elizabeth Quigley BBC ScotlandBy Elizabeth Quigley BBC Scotland
It was January 2000 and I'd just started a new job, my dream job as political correspondent for BBC Scotland.It was January 2000 and I'd just started a new job, my dream job as political correspondent for BBC Scotland.
I was very busy, working long hours, so I didn't have much time to pay attention to this strange tingling in my face, but the tingling grew until eventually everything to the left was tingling and pins and needles, and everything to the right was fine.I was very busy, working long hours, so I didn't have much time to pay attention to this strange tingling in my face, but the tingling grew until eventually everything to the left was tingling and pins and needles, and everything to the right was fine.
I convinced myself the problem lay in my wisdom teeth and I'd have to have them extracted: a prospect that terrified me.I convinced myself the problem lay in my wisdom teeth and I'd have to have them extracted: a prospect that terrified me.
So, I went to my GP, sure I was wasting his time, and that he would send me to the dentist. He didn't. Instead he made me an appointment with the neurologist at the Southern General Hospital in Glasgow for the next day.So, I went to my GP, sure I was wasting his time, and that he would send me to the dentist. He didn't. Instead he made me an appointment with the neurologist at the Southern General Hospital in Glasgow for the next day.
Despite the speed of the appointment, I didn't realise the seriousness of the situation.Despite the speed of the appointment, I didn't realise the seriousness of the situation.
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Extract from the documentaryExtract from the documentary
The neurologist did a few tests asked me to move my legs about, and examined my face. He said: "I think it's inflammation of the nerves, but to make sure we should get an MRI scan done, and we'll do that tomorrow." The neurologist did a few tests, asked me to move my legs about, and examined my face. He said: "I think it's inflammation of the nerves, but to make sure we should get an MRI scan done, and we'll do that tomorrow."
I still didn't think any of this was a big deal. I went along for the MRI scan and was called in for diagnosis.I still didn't think any of this was a big deal. I went along for the MRI scan and was called in for diagnosis.
I remember sitting in the waiting room and as I was getting up to go across, feeling a complete fraud, and this lady said to me as I was walking away, "you've got nothing to worry about, you're very healthy".I remember sitting in the waiting room and as I was getting up to go across, feeling a complete fraud, and this lady said to me as I was walking away, "you've got nothing to worry about, you're very healthy".
And I walked away past her along to the neurologist's office thinking you're right, I've nothing to worry about, I'm a complete fraud, what a waste of time.And I walked away past her along to the neurologist's office thinking you're right, I've nothing to worry about, I'm a complete fraud, what a waste of time.
MRI scanMRI scan
I went in and sat down opposite the neurologist, noticed there was a nurse there as well, which struck me as a bit strange, but I didn't really think too much about that.I went in and sat down opposite the neurologist, noticed there was a nurse there as well, which struck me as a bit strange, but I didn't really think too much about that.
And then the neurologist said: "Yeah, the MRI scan that has confirmed that it is inflammation of the nerves". And I'm thinking, "fine, well you knew that already apparently".And then the neurologist said: "Yeah, the MRI scan that has confirmed that it is inflammation of the nerves". And I'm thinking, "fine, well you knew that already apparently".
But the shock hit me when he added: "And that is eh Multiple Sclerosis." But the shock hit me when he added: "And that is eh multiple sclerosis."
Back then I didn't know anyone with multiple sclerosis, no one in my family had the disease, and it wasn't an illness I knew much about. Back then I didn't know anyone with multiple sclerosis, no-one in my family had the disease, and it wasn't an illness I knew much about.
But since I've learned Scotland is believed to have the highest rates of multiple sclerosis in the world. But since, I've learned Scotland is believed to have the highest rates of multiple sclerosis in the world.
Elizabeth Quigley was delighted to land a job as a BBC political reporterElizabeth Quigley was delighted to land a job as a BBC political reporter
About 10,500 - or one in 500 people here - has MS.About 10,500 - or one in 500 people here - has MS.
Their symptoms range from the mild and hidden, to the more severe.Their symptoms range from the mild and hidden, to the more severe.
For me, eight years ago it was a tingling in my face, now I get tired more easily and sometimes have to use a stick to walk.For me, eight years ago it was a tingling in my face, now I get tired more easily and sometimes have to use a stick to walk.
In terms of the progression of the disease, the most frustrating thing is not knowing what the future holds. MS is not something I think about every minute of every day, but it is something I've had to face while making a BBC documentary. I'm determined to find out why Scotland has such a high rate of the disease.In terms of the progression of the disease, the most frustrating thing is not knowing what the future holds. MS is not something I think about every minute of every day, but it is something I've had to face while making a BBC documentary. I'm determined to find out why Scotland has such a high rate of the disease.
Whenever I mention the statistics to people the immediate response is always the same - Why? Why is that? Well the simple answer is - no-one knows.Whenever I mention the statistics to people the immediate response is always the same - Why? Why is that? Well the simple answer is - no-one knows.
As a journalist it's annoying not to be able to find a satisfactory answer to that question and as someone living with MS it's extremely frustrating. As a journalist, it's annoying not to be able to find a satisfactory answer to that question and as someone living with MS it's extremely frustrating.
Building blocksBuilding blocks
I wanted to delve deeper, and that's why I've spent the last few months investigating the disease for the documentary "Scotland's Hidden Epidemic: The truth about MS", to be broadcast on Wednesday July 23 at 2245 BST. I wanted to delve deeper, and that's why I've spent the last few months investigating the disease for the documentary "Scotland's Hidden Epidemic: The truth about MS", to be broadcast on Wednesday, July 23, at 2245 BST.
My journey to find out about this curious connection between MS and the country I love, where I was born and grew up is what this programme is all about.My journey to find out about this curious connection between MS and the country I love, where I was born and grew up is what this programme is all about.
I've travelled to Orkney and Canada, interviewed world leaders in the study of MS and met other people living and coping with MS just like me who are keen to find out why it's so common here.I've travelled to Orkney and Canada, interviewed world leaders in the study of MS and met other people living and coping with MS just like me who are keen to find out why it's so common here.
MS can often quite literally be mapped along lines of latitude. It's more common the further north you travel from the equator - and lack of sunlight and Vitamin D are all factors. Another theory is that a virus triggers the onset of the illness.MS can often quite literally be mapped along lines of latitude. It's more common the further north you travel from the equator - and lack of sunlight and Vitamin D are all factors. Another theory is that a virus triggers the onset of the illness.
And it looks like it's probably a combination of all these things - a combination of building blocks - building up to MS.And it looks like it's probably a combination of all these things - a combination of building blocks - building up to MS.
Elizabeth Quigley took her investigation to Nova ScotiaElizabeth Quigley took her investigation to Nova Scotia
But these are not the only factors in explaining why and where MS occurs.But these are not the only factors in explaining why and where MS occurs.
Genetics seem to play a role in all this. Dr Jim Wilson of Edinburgh University has just launched a major study looking at MS in the Northern Isles. Orkney and Shetland are widely believed to have the highest rates of MS on the planet.Genetics seem to play a role in all this. Dr Jim Wilson of Edinburgh University has just launched a major study looking at MS in the Northern Isles. Orkney and Shetland are widely believed to have the highest rates of MS on the planet.
Dr Wilson wants anyone with MS, whether an Orcadian living at home or away, to get in touch.Dr Wilson wants anyone with MS, whether an Orcadian living at home or away, to get in touch.
So, could there be a Scottish gene, or genes? Could MS really be something we Scots have taken around the globe over the centuries? It's a startling thought, and one which I investigate in the documentary.So, could there be a Scottish gene, or genes? Could MS really be something we Scots have taken around the globe over the centuries? It's a startling thought, and one which I investigate in the documentary.
It's been tough at times. MS is a disease I have, but not one I think about every minute of every hour of every day. But it's also been fascinating, and inspiring.It's been tough at times. MS is a disease I have, but not one I think about every minute of every hour of every day. But it's also been fascinating, and inspiring.
And, however the mystery tour of my MS ends, finding a cure or even some answers as to why it's so common here, would definitely be a very good ending to my story of MS.And, however the mystery tour of my MS ends, finding a cure or even some answers as to why it's so common here, would definitely be a very good ending to my story of MS.
Elizabeth Quigley's investigation, "Scotland's Hidden Epidemic: The truth about MS", will be broadcast on Wednesday 23 July, on BBC One Scotland at 2245 BST.Elizabeth Quigley's investigation, "Scotland's Hidden Epidemic: The truth about MS", will be broadcast on Wednesday 23 July, on BBC One Scotland at 2245 BST.