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| NHS board reviews girl's therapy | NHS board reviews girl's therapy |
| (about 9 hours later) | |
| Health board officials in Glasgow are meeting to discuss whether to fund treatment for an eight-year-old girl with a rare degenerative condition. | Health board officials in Glasgow are meeting to discuss whether to fund treatment for an eight-year-old girl with a rare degenerative condition. |
| The parents of Hayleigh Reynolds had been told NHS Greater Glasgow and Clyde would not pay for enzyme replacement therapy at a cost of £100,000 a year. | The parents of Hayleigh Reynolds had been told NHS Greater Glasgow and Clyde would not pay for enzyme replacement therapy at a cost of £100,000 a year. |
| Health officials said they sympathised, but the treatment had not been approved for use by the NHS in Scotland. | Health officials said they sympathised, but the treatment had not been approved for use by the NHS in Scotland. |
| They are reviewing the situation, with a final decision expected in December. | |
| Hayleigh has a form of Mucopolysaccharidosis known as Hurler syndrome, which is caused by an enzyme deficiency. | Hayleigh has a form of Mucopolysaccharidosis known as Hurler syndrome, which is caused by an enzyme deficiency. |
| Her parents said she was the only patient in the UK to be refused therapy with the drug Laronidase, and that she may have to go to England for treatment. | Her parents said she was the only patient in the UK to be refused therapy with the drug Laronidase, and that she may have to go to England for treatment. |
| Her family had raised a judicial review of the decision at the Court of Session. | Her family had raised a judicial review of the decision at the Court of Session. |
| However, the application for the therapy is now to be looked at by the health board. | However, the application for the therapy is now to be looked at by the health board. |